Supreme Court Allowing Texas Abortion Law: Further Evidence Prenatal Testing is about Abortion The above photo was shared by my kids’ maternal grandmother today, and it made me very happy and winsome for a time of such innocence. Elsewhere, someone wrote something stupid and bigoted on Twitter that made me sad and infuriated. But, unfortunately, it was further evidence that, in the end, prenatal genetic testing’s administration is […]
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Ch. 5, Part 5: National Down Syndrome Support Organizations After covering a few other written resources not mentioned in a previous section of this chapter, I then turn our attention to the existing national Down syndrome support organizations. For me personally, we received the book Babies with Down syndrome from our local support organization when Juliet was born. Some have described it as the […]
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Ch. 5, Part 4: A Nationwide Down syndrome First Call Program Without any federal support, the Massachusetts Down Syndrome Congress has launched a nationwide first call program for new and expectant parents learning their child has Down syndrome. Read on about this excellent resources and why it launches over a decade after Congress authorized exactly this resource by a unanimous vote. A public policy history lesson […]
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Ch. 5, Part 3: Written & online resources for parents about Down syndrome The previous section of Chapter 5’s exploration of available supporting resources for new and expectant parents discussed the importance of accurate, up-to-date, balanced resources about Down syndrome. This section describes the three resources identified by major medical organizations to be provided to parents. Since the initial rollout, the Lettercase booklet has been through regular rounds […]
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Ch. 5, Part 2: Accurate, balanced, up-to-date information about Down syndrome In this second section of Chapter Five’s discussion of the available support resources for new and expectant parents of children with Down syndrome, I discuss what every medical guideline recommends and what all parents want–accurate, balanced, up-to-date information–and how the resource providing that information was developed. For almost all of time, when a physician told […]
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